Day 2 – How do you describe it?

Well there are good days and bad days when it comes to health. This is a pretty, but not severely, bad day. I had a good day once, I think it was a Thursday.

I’ve been pretty sore since I woke up and steadily this increased as the working day went on. My legs and arms are hollow and I feel like someone used my body as a pin cushion without a needle in sight, of which I have used many over the years, don’t worry they’ve all been perfectly legal!

The idea of sitting for an hour getting oxygen pumped in to my lungs seemed almost like a relief despite the fact that I don’t exactly do a lot of moving around as it is. My longest piece of exercise during the day is putting paper in the printer!

Today I was in with 4 other people, 3 of whom seem to still be quite physically able. The 4th person was a gentleman who was in a wheelchair/scooter. Its a small space so you can’t help but overhear others conversations. He was explaining that he had lost the use of his right hand and he was then asked what he missed most the most due to MS. His answer was running. I can’t lie this got to me, it still is even as i begin typing this. I do still try and play guitar when I can and so as bad as my right hand is now for strumming, I can’t imagine not being able to play anymore at all. I spent the majority of my childhood running about. I played football for a couple of different clubs in my teen years (I was crap but boy could I run, and throw!) and I was also in a running club as I always enjoyed going for a good sprint and trying to beat previous times. I already know these things are no longer possible for me but at least I can still walk, albeit aided by a crutch that has been necessary for nearly a decade now and I rely on it more now than ever.

I’m still having a bit of a struggle adjusting the mask to fit comfortably and make sure I am getting the most oxygen into my blood stream. this sadly means removing the beard I have allowed to do whatever it wants, so the mask will fit better on my face. One of smallest sacrifices I have had to make over these 10 years but still sad that its another thing MS has taken away from me in one way or another. Still can’t say I feel any different. Again I would be surprised if I did after only two sessions. I have walked out of it very sore and very fatigued, although I already was before I went in so its hard to gauge any kind of progress so far

If you made it to the end of this moan well done, you can pat yourself on the back. I’m heading to the fridge for a can. Need to keep exercising to keep the muscle up so if I must raise the can, then i shall. Day off from oxygen therapy tomorrow but depending on how my day goes I may post anyway

 

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Fendercali

I was diagnosed with Relapsing/Remitting MS in 2004 when I was 20. I originally started this page document my progress using Oxygen Therapy but now the new PIP has started to replace DLA and I, like so many others, have been told i am no longer eligible to receive a Motability Car and so I am fighting against the DWP to explain exactly why they are wrong.

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