Between Friday night and this afternoon, I have relied on family for 8 journeys! Now we can kinda accept these journeys over the weekend cos I’m not causing my family too much chaos but today, today is different.
They have had to ask for time off work to ferry me to the hospital and back, a journey the DWP seem to think I’m capable of taking on my own! 2 buses on a more than 1 and a half hour journey to leith, with walks between the bus stops and hospital (Baring in mind their own assessment says I can walk no more than “50 metres”) and then the same back again! Again my life takes on a rather ironic punishment as I go to…..THE CHRONIC PAIN CLINIC!
Am I wrong?! Am I living in lala land?! Does it seem unreasonable to receive help from the Welfare State rather than diminish the work force of a small family business??!
This past week has done more to make me feel needy and incapable than the last 12 years living with this progressive debilitating disease! Don’t think I’ve ever felt as useless as I do right now!